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Cancer52 is registered as a charity in England and Wales (1174569) and a company limited by guarantee in England and Wales (7994413)

17 Jul 2019

Cancer52 and PHE/NCRAS are delighted to be able to share a film and a report of the very successful Developments in Data for Rare and Less Common Cancers event held on 22nd May 2019.

The report provides a written overview of the whole event and the film includes snippets from several of the event speakers talking about their work and what they hope it will achieve for people with rare and less common cancers.

Click here to read...

10 Jul 2019

On Wednesday 10th July we launched a new report, ‘Getting a better deal for people with rare and less common cancers: what we can learn from patients’ at an event for MPs at Portcullis House, Houses of Parliament. 

The report was based on a patient survey conducted in 2018. Over 670 people told us about their experiences of having a rare or less common cancer.  Three patients, Roy, Liz and Steve share their stories in the repor...

30 Jan 2019

The NHS Long Term Plan was published on Monday 7th January. Our immediate response was published on 7th January and can be viewed here.

We have now with input from members of our Policy and Public Affairs Steering Group (specifically with thanks to Target Ovarian Cancer, Teenage Cancer Trust, Pancreatic Cancer UK and Bloodwise) created a more detailed and informed response which is published here.

7 Jan 2019

This is an ambitious plan by NHS England to move more care into the community and out of hospital, accompanied by increased funding for primary and community care, as well as continuing the trend of greater integration of services.

The cancer commitments are relatively few but hearteningly take an ‘all cancer’ approach, which by definition includes rare and less common cancers, instead of previous approaches, which have sometim...

7 Jan 2019

As the NHS Long Term Plan is published - some messages of hope from people with rare and less common cancer for 2019 and beyond …. a short film made by Cancer52 at Britain Against Cancer, December 2018.

With thanks to all the patients, carers and support group charities who took part, and Cancer Minister Steve Brine MP for his input and support.

Click here to view film

29 Nov 2018

Cancer52, together with use MY data, have jointly produced a briefing document on what The National Data Opt-out means for cancer patients.

Visit the joint Cancer52 and use MY data ‘Patient and Carer Voice’ stand at the Britain Against Cancer 2018 conference on Tuesday 4 December, at Central Hall Westminster, to find out more.

20 Nov 2018

We are delighted that Cancer52 features in this month's New Statesman's Oncology Supplement, published to coincide with this year's Britain Against Cancer conference.

The supplement features articles from Cally Palmer, National Cancer Director at NHS England, Lynda Thomas, Chief Executive at Macmillan Cancer Support and Nic Dakin, Chair of the All Party Parliamentary Group on Cancer.

The Cancer52 section appears on p15 of the su...

31 Oct 2018

We are pleased to announce that Cancer52 is recruiting trustees to its board to support the future development and growth of the organisation’s work, in line with an ambitious new strategic plan that was approved earlier this year. 

The role description, person specification and application pack provides information about Cancer52, its Board of Trustees and details of the skills, knowledge and experience which we ar...

30 Oct 2018

In June, at the PHE Cancer Services, Data and Outcomes Conference 2018, Cancer52 worked with the National Cancer Registration and Analysis Service (NCRAS), part of PHE, to highlight the importance of access to data for rare and less common cancers. 

As well as running a joint workshop with NCRAS entitled Getting Data Out, Cancer52 also produced a film highlighting the importance of access to data for rare and less common cancer...

17 Oct 2018

We're excited to announce the publication of our new briefing document 'Getting a better deal for people with rare and less common cancers: the next ten years' which we are publishing on Wednesday 17 October at our annual all stakeholder briefing.

During our consultation process over the summer of 2018 regarding what's needed for people with rare and less common cancers in the NHS ten year plan we generated views and input...

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