8 Apr 2020

Working with our members, Cancer52 has looked at the progress that has been made for people with rare and less common cancers against the NHS Long Term Plan since it was published just over a year ago. Our findings and recommendations are published in our report Getting a better deal for rare and less common cancers: One year on from the NHS Long Term Plan.

The work to inform, and the drafting of, this report was undertaken bef...

17 Jul 2019

Cancer52 and PHE/NCRAS are delighted to be able to share a film and a report of the very successful Developments in Data for Rare and Less Common Cancers

event held on 22nd May 2019. 

The report provides a written overview of the whole event and the film includes snippets from several of the event speakers talking about their work and what they hope it will achieve for people with rare and less common cancers. 

The event received...

10 Jul 2019

On Wednesday 10th July we launched a new report, ‘Getting a better deal for people with rare and less common cancers: what we can learn from patients’ at an event for MPs at Portcullis House, Houses of Parliament. 

The report is based on a patient survey conducted in 2018 and it highlights what difficulties amd delays patients with a rare and less common cancer can face when obtaining a diagnosis, the challenges to access treat...

7 Jan 2019

As the NHS Long Term Plan is published - some messages of hope from people with rare and less common cancer for 2019 and beyond …. a short film made by Cancer52 at Britain Against Cancer, December 2018.

With thanks to all the patients, carers and support group charities who took part, and Cancer Minister Steve Brine MP for his input and support.

Click here to view film

17 Oct 2018

We're excited to announce the publication of our new briefing document 'Getting a better deal for people with rare and less common cancers: the next ten years' which we are publishing on Wednesday 17 October at our annual all stakeholder briefing.

During our consultation process over the summer of 2018 regarding what's needed for people with rare and less common cancers in the NHS ten year plan we generated views and input...

17 May 2017

Available from 6th December 2016 to mark the Cancer52 session at Britain Against Cancer – a new report from Cancer52 on the role of the CNS in rare and less common cancers – some personal perspectives from patients and nurses. 

With thanks to our supporters but especially to those who shared their story.

Access the full report

16 Dec 2015

Our new patient experience report  - what does the evidence from the National Cancer Patient Experience Survey show us about experience of people with a rare or less common cancer?  What is it that can make the difference to that experience?

Read our chair’s summary of the challenges faced by people with a rare or less common cancer patient experience or access the full report

7 Dec 2015

A new report on patient group involvement in the new Patient and Clinical Engagement (PACE) process at the Scottish Medicines Consortium (SMC) – what can we learn from these experiences and what can we share?

Read a summary of the report findings or access the full report.

18 Jun 2015

We are delighted to announce that our new report “Rare and Less Common Cancers: Incidence and Mortality in England, 2010 to 2013” is published today (Monday 8th June 2015) on the first day of the NCIN conference in Belfast. It is a report produced jointly by Cancer52 and the National Cancer Intelligence Network (NCIN) at Public Health England.

The new report gathers for the first time data on nearly 280 cancers and gives i...

10 Jun 2014

A new report published today (Tuesday 10th June 2014) by Cancer52 shows that the percentage of cancer deaths from those cancers outside the 'big four' (of breast, bowel, prostate and lung) is rising with a new high of 54% recorded in 2011.

This new data has been collected by the National Cancer Intelligence Network (NCIN), Public Health England, and published on the second day of its conference in Birmingham on 10th June 2014.


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