Cancer52 and PHE/NCRAS are delighted to be able to share a film and a report of the very successful Developments in Data for Rare and Less Common Cancers
event held on 22nd May 2019.
The report provides a written overview of the whole event and the film includes snippets from several of the event speakers talking about their work and what they hope it will achieve for people with rare and less common cancers.
The report is based on a patient survey conducted in 2018 and it highlights what difficulties amd delays patients with a rare and less common cancer can face when obtaining a diagnosis, the challenges to access treat...
As the NHS Long Term Plan is published - some messages of hope from people with rare and less common cancer for 2019 and beyond …. a short film made by Cancer52 at Britain Against Cancer, December 2018.
With thanks to all the patients, carers and support group charities who took part, and Cancer Minister Steve Brine MP for his input and support.
Available from 6th December 2016 to mark the Cancer52 session at Britain Against Cancer – a new report from Cancer52 on the role of the CNS in rare and less common cancers – some personal perspectives from patients and nurses.
With thanks to our supporters but especially to those who shared their story.
Our new patient experience report - what does the evidence from the National Cancer Patient Experience Survey show us about experience of people with a rare or less common cancer? What is it that can make the difference to that experience?
Read our chair’s summary of the challenges faced by people with a rare or less common cancer patient experience or access the full report
A new report on patient group involvement in the new Patient and Clinical Engagement (PACE) process at the Scottish Medicines Consortium (SMC) – what can we learn from these experiences and what can we share?
We are delighted to announce that our new report “Rare and Less Common Cancers: Incidence and Mortality in England, 2010 to 2013” is published today (Monday 8th June 2015) on the first day of the NCIN conference in Belfast. It is a report produced jointly by Cancer52 and the National Cancer Intelligence Network (NCIN) at Public Health England.
The new report gathers for the first time data on nearly 280 cancers and gives i...
A new report published today (Tuesday 10th June 2014) by Cancer52 shows that the percentage of cancer deaths from those cancers outside the 'big four' (of breast, bowel, prostate and lung) is rising with a new high of 54% recorded in 2011.
This new data has been collected by the National Cancer Intelligence Network (NCIN), Public Health England, and published on the second day of its conference in Birmingham on 10th June 2014.
The National Cancer Research Institute (NCRI) and Cancer52 have published a report "Research into less common cancers". It shows for the first time the level and type of research investment in rare and less common cancers by members of Cancer52.
To read the full copy of the report click here; to read a summary of key findings click here and to read the press release click here.