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Summary of Cancer52 / PHE Event: Development in Data for Rare and Less Common Cancers

Cancer52 and PHE/NCRAS are delighted to be able to share a film and a report of the very successful Developments in Data for Rare and Less Common Cancers

event held on 22nd May 2019.

The report provides a written overview of the whole event and the film includes snippets from several of the event speakers talking about their work and what they hope it will achieve for people with rare and less common cancers.

The event received very positive feedback, with 100% of delegates who completed the survey rating it ‘Excellent’ or ‘Good’. 87% of people said the event was useful for networking and encouraging collaboration and 97% of survey respondents said they would attend a similar targeted event for rare and less common cancers in the future.

Lucy Elliss-Brookes, Head of Cancer Analysis at Public Health England said “There was a real buzz in the room throughout the event, with a wide range of people coming together to share and learn about rare and less common cancers. My personal highlight was the patients’ support for the work that we are doing with their data, they could really see that by bringing teams together we can collectively achieve so much more with the data that we work hard to collect and analyse.”

Jane Lyons, CEO of Cancer52 said “We were so proud and pleased to be able to work with PHE/NCRAS on this first jointly organised data event and absolutely delighted that we were able to focus on data around rare and less common cancers. Our thanks to the PHE/NCRAS team who worked with us on this – the feedback scores pay testament to their work. My ask now is that the film and the report are shared as widely as possible to encourage those working in the field or thinking about doing so. There’s now a showcase for their work.”

To find out more about the National Cancer Registration and Analysis Service at Public Health England click here.

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