Cancer52 was invited to participate in the NCSI work stream to map the research questions relating to the survivorship needs of people affected by the less common cancers. We organised an event for Cancer52 members, to which they were encouraged to bring people directly affected by the less common cancers (survivors and carers). A broad range of issues emerged on the day and these were formulated into research questions and included in the report which was written up for submission to the NCSI. A summary of the submission can be found here.