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Coronavirus Update


Cancer52 is already a virtual organisation and has run under this business model for a number of years, only bringing people together to help empower our members, share information and allow for some hugely productive networking.

But under current circumstances we have reorganised all our meetings to virtual ones.


More importantly, we will share information about coronavirus for people with rare and less common cancer with all our members via e-bulletins.  Cancer52 is regularly joining teleconference calls with NHSE and other charities on the evolving situation to ensure there is an up to date flow of consistent information.

A FAQ for people with cancer under the One Cancer Voice signed off by NHS England is now available here. (last update 4th June 2020)


We want to ensure that we are doing what our members will find most useful, and are happy to take suggestions on that. Please refer to this one-pager on what we have done thus far. (last update 27th Apr 2020)

55% of UK cancer deaths are from rare and less common cancers.


Despite this, these cancers remain severely under represented and

under-funded across all areas, including policy, services and research.

Cancer52 is an alliance of nearly 100 organisations working to address this inequality and improve outcomes for patients with these highly challenging diseases.

of diagnoses are for rare and less common cancers
of deaths are
from rare and less common cancers
why are diagnosis and death stats so different?

We work on matters that impact on the

rare and less common cancer community.

These are our objectives:

Unify and empower our member organisations.
Use our unique structure to capture the patient voice of those with rare and less common cancers.
Take that voice on to those bodies and individuals who influence cancer policy, science, clinical outputs, services and treatment.
Our Recent News

We are delighted that Cancer52 features in this month's New Statesman's Oncology Supplement, published to coincide with this year's Britain Against Cancer conference.

The supplement features articles f...

In June, at the PHE Cancer Services, Data and Outcomes Conference 2018, Cancer52 worked with the National Cancer Registration and Analysis Service (NCRAS), part of PHE, to highlight the importance of...

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Cancer52 is registered as a charity in England and Wales (1174569) and a company limited by guarantee in England and Wales (7994413)