Cancer52 has responded on the above consultation (February 2017) and full response can be found here.
The topic was discussed at the Cancer52 All Member Meeting on 24th January 2017. As a result of that presentation and follow up Q&As, a small working group of Cancer52 members was formed to answer the broad question – ‘What’s the point?’, with the aim of identifying where patient involvement makes a difference to NICE process or results and how we could better manage the time and energy involved from patient groups and patients against what the likely impact of patient group involvement is likely to be.
The working group has written a briefing entitled NICE and Patient Involvement…What’s the point?
Our particular thanks to the working group who contributed so much to this work and to Cancer52 policy lead Sasha Daly of Teenage Cancer Trust:
Chris West, Bloodwise
David Innes, CLL Support Association
Nic Puntis, GIST Support UK
Zack Pemberton-Whiteley, Leukaemia Care
Karen Friett, The Lymphoedema Support Network
Roger Brown, WMUK