MDS UK Patient Support Group
Myelodysplastic Syndromes (MDS) are a group of diverse bone marrow disorders in which the bone marrow does not produce enough healthy blood cells. It is often referred to as a “Bone marrow failure disorder”. It is primarily a disease of the elderly, with an average age of 74 at diagnosis. Some patients do succumb to the direct effects of the condition, due to reduced blood cell counts. 10% to 30% of MDS patients will progress to acute myeloid leukaemia (AML), depending on the degree of severity. 2000 to 3000 new patients are diagnosed each year with MDS. MDS UK offers support, advice, and information to patients diagnosed with MDS – and their families; organises national and regional patient information meetings with specialist speakers; raises awareness of MDS amongst the general population, patients, carers, health care professionals and politicians across the UK. MDS UK is the only organisation completely dedicated to MDS in the UK.